What lay illness narratives reveal about AIDS-related stigmatization

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What lay illness narratives reveal about AIDS-related stigmatization. (2022). Communicare: Journal for Communication Studies in Africa, 22(2), 1-24. https://doi.org/10.36615/jcsa.v22i2.1792
  • Articles
  • Submited: October 22, 2022
  • Published: October 24, 2022

Abstract

The main purpose of this contribution is to broaden the understanding of variables
surrounding the stigmatization of people living with HIV/AIDS by analyzing a corpus of
Afrikaans-speaking teenagers' narratives on HIV/AIDS. Support is given for the hypothesis
that lay illness narratives are interdiscursive constructions, based on media discourses
about HIV/AIDS, and mapped against the mental schemas of the narrator's own life and
identity. Instances of convergence as well as dissonance between reported illness
narratives (media narratives) and lay illness narratives are highlighted, with specific
reference to the clustering of stereotypical features, constituting three archetypes of
people living with HIV/AIDS, namely the AIDS carrier, the AIDS victim and the AIDS
survivor.

References

  1. BABBIE, E. & MOUTON, J. 2002. The practice of social research. 2nd edition. Oxford : Oxford University Press.
  2. BROWN, L., TRUJILLO, L & MACINTYRE, K. 2001. Interventions to reduce HIV/AIDS stigma: What have we learned? New York : Population Council.
  3. CLANDININ, D.J. & CONNELLY, F.M. 2000. Narrative inquiry. San Francisco : Jossey-Bass Publishers.
  4. https://doi.org/10.1016/B978-008043349-3/50013-X DOI: https://doi.org/10.1016/B978-008043349-3/50013-X
  5. COULSON, N. 2003. Developments in the use of the mass media at national level for HIV/AIDS prevention in South Africa. [Web:] http://www.comminit.com/stcoulson/sld-5497.html on 2003/02/21.
  6. CRIMP, D. 1992. Portraits of people with AIDS. (In Grossberg, L. Nelson, C. & Treichler, P. eds, Cultural Studies. New York : Routledge.)
  7. FAIRCLOUGH, N. 1992. Language and social change. Oxford : Blackwell.
  8. FRANK, A.W. 1995. The wounded storyteller. Body, illness, and ethics. Chicago : Chicago University Press.
  9. https://doi.org/10.7208/chicago/9780226260037.001.0001 DOI: https://doi.org/10.7208/chicago/9780226260037.001.0001
  10. FRECCERO, J. 1986. Autobiography and narrative. (In Heller, T.C., Sosna, M & Wellbery, D.E. eds,
  11. Reconstrucing individualism. Autonomy, individuality, and the self in Western thought. Stanford : Stanford University Press.)
  12. GEVISSER, M. 1995. AIDS and the media, AIDS Bulletin, 4(1):6-9.
  13. ALLIDAY, M.A.K. 1978. Language as a social semiotic. London : Edward Arnold.
  14. HAWKINS, A.H. 1990. A change of heart: the paradigm of regeneration in medical and religious narrative. Perspectives in Biology and Medicine, 33:547-559.
  15. https://doi.org/10.1353/pbm.1990.0058 DOI: https://doi.org/10.1353/pbm.1990.0058
  16. HYDÉN, L.C. 1997. Illness and narrative. Sociology of Health & Illness, 19(1):48-69. DOI: https://doi.org/10.1111/1467-9566.ep10934289
  17. https://doi.org/10.1111/j.1467-9566.1997.tb00015.x DOI: https://doi.org/10.1111/j.1467-9566.1997.tb00015.x
  18. JUHASZ, A. 1990. The contained threat: women in mainstream AIDS documentary. Journal of Sex Research, 27(1):25-46.
  19. https://doi.org/10.1080/00224499009551540 DOI: https://doi.org/10.1080/00224499009551540
  20. LUPTON, D. 1999. Archetypes of infection: people with HIV/AIDS in the Australian press in the mid 1990s. Sociology of Health & Illness, 21(1):37-52. DOI: https://doi.org/10.1111/1467-9566.t01-1-00141
  21. https://doi.org/10.1111/1467-9566.00141 DOI: https://doi.org/10.1111/1467-9566.00141
  22. MARSHALL, P.A. & O'KEEFE, P. 1994. Medical students' first-person narratives of a patient's story of AIDS. Social Science and Medicine, 40(1):67-76.
  23. https://doi.org/10.1016/0277-9536(94)00128-G DOI: https://doi.org/10.1016/0277-9536(94)00128-G
  24. NEWS24.COM. Search Results for Nkosi Johnson. [Web:] http://www.news24.com/News24/quickSearch/1,4366,2-7,00.html [Date of access: 2003/01/14].
  25. NEWS24.COM. Search Results for Edwin Cameron. [Web:] http://www.news24.com/News24/quickSearch/1,4366,2-_1168946,00.html [Date of access: 2003/01/14].
  26. PARKER, W & KELLY, K. 2001. Writing the epidemic: The role of the South African media in shaping response to HIV/AIDS. Conference presentation, AIDS in Context Conference, University of the Witwatersrand.
  27. PERT, C.B. 1999. Molecules of emotion. London : Simon & Schuster.
  28. POLKINGHORNE, D.E. 1988. Narrative knowing and the human sciences. Albany : State University of New York Press.
  29. ROBINSON, I. 1990. Personal narratives, social careers and medical courses: analysing life trajectories in autobiographies of people with multiple sclerosis. Social Science and Medicine, 30:1173-1186.
  30. https://doi.org/10.1016/0277-9536(90)90257-S DOI: https://doi.org/10.1016/0277-9536(90)90257-S
  31. SACKS, V. 1996. Women and AIDS: an analysis of media misrepresentations. Social Science and Medicine, 43(1):59-73.
  32. https://doi.org/10.1016/0277-9536(95)00079-8 DOI: https://doi.org/10.1016/0277-9536(95)00079-8
  33. SCHEMA THEORY. [Web:] www.hfac.uh.edu/mcl/karima/courses/summer99/writing.pdf. [Date of access: 4/10/2002].
  34. SOMERS, M.R. 1994. The narrative constitution of identity: a relational and network approach. Theory and Society, 23:605-649.
  35. https://doi.org/10.1007/BF00992905 DOI: https://doi.org/10.1007/BF00992905
  36. SONTAG, S. 1989. Illness as metaphor/AIDS and its metaphors. New York : Anchor.
  37. STANLEY, L.D. 1999. Transforming AIDS: The moral management of stigmatized identity. Anthropology & Medicine, 6(1):103-120.
  38. https://doi.org/10.1080/13648470.1999.9964576 DOI: https://doi.org/10.1080/13648470.1999.9964576
  39. STEIN, J. 2001. HIV/AIDS and the media. A literature review. Johannesburg: Centre for AIDS Development, Research and Evaluation (CADRE).
  40. STRAUSS, A. & CORBIN, J. 1998. Basics of qualitative research. Techniques and procedures of developing grounded theory. London : Sage.
  41. STRYDOM, H. & VENTER, L. 2002. Sampling and sampling methods. (In Strydom, H., Fouche, C.B. & Delport, C.S.L. eds, Research at grass roots. 2nd edition. Pretoria : Van Schaik).
  42. UNAIDS. An overview of HIV/AIDS-related stigma and discrimination. [Web:] http://www.unaids.org/fact_sheets/files/FSstigma_en.html [Date of access: 2002/12/24].
  43. USAID POPULATION COUNCIL. 1998. AIDS and stigma: A conceptual framework and research agenda. Final report from a research workshop sponsored by the National Institute of Mental Health. New York : Population Council.
  44. VINEY, L.L. & BOUSFIELD, L. 1991. Narrative analysis: a method of psychosocial research for AIDS-affected people. Social Science and Medicine, 32(7):757-765.
  45. https://doi.org/10.1016/0277-9536(91)90301-R DOI: https://doi.org/10.1016/0277-9536(91)90301-R
How to Cite
What lay illness narratives reveal about AIDS-related stigmatization. (2022). Communicare: Journal for Communication Studies in Africa, 22(2), 1-24. https://doi.org/10.36615/jcsa.v22i2.1792

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